Data Access Requests

Review the instructions here and submit the form below.

Data Access Request Form

Please fill out the fields below and click Submit. Note that we are not accepting submissions for email addresses from free accounts such as Gmail. Please use your institutional or corporate email address. Please contact us at data.access@nidagenetics.org if you have questions about the application process.

This field is for validation purposes and should be left unchanged.
Name(Required)
Email Address(Required)
Please enter the website for your Organization/Sponsoring institution. The domain of the website should match the domain of your email address. Example: https://school.edu and my.name@school.edu. While the website is not a required field, your application will not be accepted unless we can somehow validate your institution and establish that you belong to this institution.
Organization Type(Required)

Address(Required)
While this field is optional, we strongly encourage entering a value for U.S. entities, even for educational institutions, which are likely to have an EIN.
Please provide a title for this request.
Please provide a one-page description of the study and purpose of access request written on the letterhead of the sponsoring institution at which the research will be conducted.
Accepted file types: pdf, docx, Max. file size: 256 MB.
A one-thousand word non-technical summary of the proposed research. If the project is approved this statement will become publicly available to lay audiences to read the purpose and objectives of the research.
Accepted file types: pdf, docx, Max. file size: 256 MB.
Please provide the source of funding, period of support, and active/pending status.
Please upload the biosketches of the applicant and relevant investigators and co-investigators. Use full legal names and the current NIH format. If NIH biosketches are unavailable, please substitute with CVs.
Drop files here or
Accepted file types: docx, pdf, Max. file size: 256 MB.
    Provide the full legal names and contact information for all additional investigators from your institution who will have access to the dataset(s) excluding trainees covered under the NIH policy. Requesters and signing officials guarantee that these individuals have read and agreed to the terms, conditions, and statements of the respective Data Use Certification(s). 
    To share data in the NIDA Center for Genetic Studies or NIMH Repository and Resource with collaborators outside the PI’s institution, the collaborators must submit a separate Data Access Request with (1) the same project title and (2) a Research Use Statement and Cloud Use Statement, if applicable, that references the collaboration or consortium name.
    Please list any associates, such as postdocs, under the direct supervision of the Requestor, along with their email addresses, that will require access to the data.
    Please use the current NIH format.
    Drop files here or
    Accepted file types: docx, pdf, Max. file size: 256 MB.
      Requested Phenotypic Datasets
      This allows you to request downloads of addiction-related phenotypic datasets for a given disease as described here. Please either select one or more diseases or enter request specific samples (DNA, CPLs, and so on) in the field below.
      If applicable, upload the list of samples of DNA, CPLs, and so on, you are requesting. Note that CPLs are ideal for making iPSCs. See our data browser for reports of the number of subjects in various disease collections have various cell types. Contact us at data.access@nidagenetics.org if you need help determining the list of DNA samples. Alternatively, you may apply for access to just phenotypic data in the field above.
      Drop files here or
      Accepted file types: xlsx, xls, docx, pdf, Max. file size: 256 MB.
        Please explain in detail if you are requesting genetic data for the datasets and/or samples requested above. Please note you can find GWAS datasets at dbGaP: please see our Smokescreen and Other dbGaP GWAS pages for more information. A Data Use Certification Agreement is required when requesting genotypic data (see below). Please reference Center study numbers, not dbGaP IDs, when referencing genetic data. Center studies and their number can be found here.
        A digitally signed distribution agreement is required if you are requesting samples. Please see the instructions for for more information.
        Drop files here or
        Accepted file types: docx, pdf, Max. file size: 256 MB.
          This is required when generating new data from the requested biosamples. This is not required if, for example, the project aims only to analyze existing data. Please state where, what, when, and how data and research resources will be shared. What NIH repository will be used to distribute data and the research resource such as iPSCs. Sharing plans must comply with NIH DMSP policy and sharing of research tools. Identifiers of a research resource must be created. For more information, see the Research Tools Policy, the NIH Policy for Data Management and Sharing, and NIH-Supported Data Sharing Resources.
          Accepted file types: docx, pdf, Max. file size: 256 MB.
          If you are requesting phenotypic and/or genotypic datasets, please upload a digitally signed PDF to indicate that you agree to the terms of the NIH Data Use Certification Agreement . You may use the template provided in the instructions.
          Max. file size: 256 MB.
          The approval of project requests depends on a carefully written Research Use Statement (250 words maximum).  See the instructions for more information.
          Max. file size: 256 MB.
          Institutional Signing Official (SO)(Required)
          By Institutional Signing Official we mean an individual that has institutional authority to legally bind the institution in administrative matters. The individual fulfilling this role may have any number of titles in the institution but is typically located in its Office of Sponsored Research or equivalent.
          SO Email Address(Required)
          When the request is submitted, the SO will receive an email at this address. They must respond to this email in order to establish the authenticity of this contact information.
          Please provide an institutional website for the SO. Ideally, it will list the name and contact information of the SO.
          Please upload documentation indicating that the individual entered in the SO field above has the institutional authority to legally bind the institution in administrative matters. This statement cannot be from SO. Example: a letter from the VP of Research on institutional letterhead.
          Accepted file types: pdf, docx, Max. file size: 256 MB.
          Please provide an institutional certification for this Data Access Request in the form of a PDF that is digitally signed by the SO on institutional letterhead. A template for this form can be found on the instructions page.
          Accepted file types: pdf, Max. file size: 256 MB.
          Information Technology Director(Required)
          Provide full legal name of the IT Director designated to be a senior IT official with the necessary expertise and authority to affirm the IT capacities at a academic institutions. Please see additional details in the instructions.
          IT Director Email(Required)
          Please upload a PDF digitally signed by the IT directory agreement to specifications provided in the instructions.
          If the data access request (DAR) process expects a Cloud Use Statement for investigators interested in using Cloud Computing, investigators must provide a Cloud Use Statement about the Cloud Service Provider (CSP) and/or third-party IT system and agree to secure the data according to the NIH Security Best Practices for Users of Controlled-Access Data (PDF). The Cloud Use Statement should at least state the name of the CSP and/or third-party IT system, the security standard, and how the CSP and/or third-party IT system will be used to carry out the work described in the Research Use Statement. If applicable, the investigator should describe the role of any Collaborators in using the CSP and/or third-party IT system. If the Approved User(s) plans to collaborate with investigators outside the Requester, the investigators at each external site must submit an independent DAR using the same project title and Research Use Statement, and if the DAR process expects when using the cloud, a Cloud Use Statement. New uses of these data outside those described in the DAR will require submission of a new DAR; modifications to the research project will require submission of an amendment to this application (e.g., adding or deleting Requester, Collaborators from the Requester, adding datasets to an approved project). Access to the requested dataset(s) is granted for a period of one (1) year, with the option to renew access or close-out a project at the end of that year.
          Accepted file types: pdf, docx, Max. file size: 256 MB.
          Please provide a letter from your IRB or equivalent. Some studies will require IRB approval or exemption. When IRB approval or exemption is required, applicants must document human subject approval by an Institutional Review Board (IRB or human subjects committee) constituted according to the requirements of the Dept. of Health & Human Services Office for Human Research Protections (OHRP). Applicants should note that all data and materials in the repository were stripped of all personal identifiers before they were submitted to the repository, such that no identifying information is associated with the samples. However, applicants should provide documentation of IRB review and either approval of the proposed project or exemption of the proposed project from the need for further IRB review. The IRB approval will not be required at the time the Access Request is submitted. However, neither data nor DNA samples will be released until evidence of IRB approval or exemption has been received.
          Drop files here or
          Accepted file types: pdf, docx, Max. file size: 256 MB.
            Billing Address(Required)
            Shipping Address(Required)
            Optional
            Optional
            Feel feel to provide any comments that may be helpful in reviewing your application.