Application for Data Access

Data Access Application Form

Please fill out the fields below and click Submit. Note that we are not accepting submissions for email addresses from free accounts such as Gmail. Please use your institutional or corporate email address. Please contact us at data.access@nidagenetics.org if you have questions about the application process.

This field is for validation purposes and should be left unchanged.
Name(Required)
Email Address(Required)
Please enter the website for your Organization/Sponsoring institution. The domain of the website should match the domain of your email address. Example: https://school.edu and my.name@school.edu. While the website is not a required field, your application will not be accepted unless we can somehow validate your institution and establish that you belong to this institution.
Organization Type(Required)

Address(Required)
Please provide a one-page description of the study and purpose of access request written on the letterhead of the sponsoring institution at which the research will be conducted.
Accepted file types: pdf, docx, Max. file size: 256 MB.
Please provide the source of funding, period of support, and active/pending status.
Please upload the biosketches of the applicant and relevant investigators and co-investigators. Use the current NIH format.
Drop files here or
Accepted file types: docx, pdf, Max. file size: 256 MB.
    Please use the current NIH format.
    Drop files here or
    Accepted file types: docx, pdf, Max. file size: 256 MB.
      Please see here for instructions. The distribution agreements must be digitally signed.
      Drop files here or
      Accepted file types: docx, pdf, Max. file size: 256 MB.
        Please state where, what, when, and how data and research resources will be shared. What NIH repository will be used to distribute data and the research resource such as iPSCs. Sharing plans must comply with NIH DMSP policy and sharing of research tools. Identifiers of a research resource must be created. For more information, see the Research Tools Policy, the NIH Policy for Data Management and Sharing, and NIH-Supported Data Sharing Resources .
        Accepted file types: docx, pdf, Max. file size: 256 MB.
        Billing Address(Required)
        Shipping Address(Required)
        Optional
        Optional
        Requested Phenotypic Datasets
        This allows you to request downloads of addiction-related phenotypic datasets for a given disease as described here. Please either select one or more diseases or enter request specific samples (DNA, CPLs, and so on) in the field below.
        If applicable, upload the list of samples of DNA, CPLs, and so on, you are requesting. Note that CPLs are ideal for making iPSCs. See our data browser for reports of the number of subjects in various disease collections have various cell types. Contact us at data.access@nidagenetics.org if you need help determining the list of DNA samples. Alternatively, you may apply for access to just phenotypic data in the field above.
        Drop files here or
        Accepted file types: xlsx, xls, docx, pdf, Max. file size: 256 MB.
          Please provide a letter from your IRB or equivalent. Some studies will require IRB approval or exemption. When IRB approval or exemption is required, applicants must document human subject approval by an Institutional Review Board (IRB or human subjects committee) constituted according to the requirements of the Dept. of Health & Human Services Office for Human Research Protections (OHRP). Applicants should note that all data and materials in the repository were stripped of all personal identifiers before they were submitted to the repository, such that no identifying information is associated with the samples. However, applicants should provide documentation of IRB review and either approval of the proposed project or exemption of the proposed project from the need for further IRB review. The IRB approval will not be required at the time the Access Request is submitted. However, neither data nor DNA samples will be released until evidence of IRB approval or exemption has been received.
          Drop files here or
          Accepted file types: pdf, docx, Max. file size: 256 MB.
            Feel feel to provide any comments that may be helpful in reviewing your application.